Evelyn, who has a track record of vision complications and has undergone multiple tests, remains in the dark about the precise origin of her affliction. Although no conclusive diagnosis has been reached, there is speculation that she might be contending with CVI (cerebral visual impairment) or a brain cyst.
From Mirror UK:
She told the Liverpool Echo: "It was about 2.30am and she woke up screaming with a headache and she lost her sight in both eyes. She couldn't see anything. We called Whiston because she's there for epilepsy but they said to send her to Alder Hey but we were sent home. We got a call Sunday to bring her back in for an eye exam."
Even now Katie says they still haven’t got an official diagnosis, but they think poor Evelyn could have CVI or a cyst on her brain. She continued: "It's been horrendous, her eyesight still hasn't returned and we have no answers. She's had independence for 12 years and now it's completely gone. Even the smallest things she can't do like go the toilet on her own.
"Her vision has always been bad, she was having tests but I didn't think she'd ever go blind. We don't know where to go from here. We've not had an official diagnosis on paper so if anyone has the tiniest bit of information on what can help us. I can't put into any other words how horrendous it is.
"It's heartbreaking. She didn't have the normal independence a 12-year-old should have because of her epilepsy but around the house she'd do things for herself but now she can't. And we still don't know what it is.
